A child’s right to receive pediatric palliative care at prenatal stage
https://doi.org/10.17749/2313-7347.2020.14.1.80-88
Abstract
This paper is aimed at outlining the essence, nature as well as range of child’s guarantees for receiving pediatric palliative care at prenatal stage including common scope of the rights for such patients. It is emphasized that a child at prenatal stage (starting from certain age) is able to feel pain sensation and suffer from it, thereby underlying its right for palliative care. It is underscored as to why a child’s right at prenatal stage for pediatric palliative care (if necessary) is subject to legal recognition and legal protection.
About the Authors
I. V. Ponkin
Institute of Public Administration and Management Civil Service, Russian Presidential Academy of National Economy and Public Administration under the President of RF
Russian Federation
Russian Federation
Igor V. Ponkin - MD, PhD (Law), Professor, State Professor, Institute of Public Administration and Civil Service, Researcher ID: D-3414-2016.
84 Vernadskogo Ave., Moscow 119606
A. A. Ponkina
Institute of relations between the State and religious denominations and Law
Russian Federation
Russian Federation
Alexandra A. Ponkina - PhD (Law), Deputy Director.
PO box49, Moscow 117525
A. S. Shkoda
City Clinical Hospital № 67 named after LA. Vorokhobov, Moscow Healthcare Department
Russian Federation
Russian Federation
Andrey S. Shkoda - MD, Dr Sci Med, Professor, Chief Physician.
2/44 Salyama Adilya St., Moscow 123423
References
1. Ponkina A.A., Ponkin I.V. Legal regulation of palliative care. [Pravovoe regulirovanie palliativnoi meditsinskoi pomoshchi]. Moskva: GEOTAR-Media, 2019. 176 s. (In Russ.). DOI: 10.33029/9704-5253-0-PRP-2019-1-176.
2. Catlin A.J., Carter B.S. Creation of a neonatal end of life palliative care protocol. JPerinatol. 2002;22(3):184-95. DOI: 10.1038/sj.jp.7210687.
3. Breeze A.C.G., Lees C.C., Kumar A. et al. Palliative care for prenatally diagnosed lethal fetal abnormality. Arch Dis Child Fetal Neonatal Ed. 2007;92(1):F56-F58. DOI: 10.1136/adc.2005.09212.
4. Examination in humanism. The Charter for the Rights of the Dying Child was represented. (In Russ.). Available at: http://www.pediatr-russia.ru/sites/default/files/file/hartiya_press.pdf. (Accessed: 03.09.2019).
5. Log um rettindi sjuklinga. 1997;74:28. Available at: http://www.althingi.is/lagas/nuna/1997074.html. (Accessed: 03.09.2019).
6. Hynson J.L. The child’s journey: Transition from health to ill-health. In: Oxford Textbook of Palliative Care for Children, 1st edition. Eds. A. Goldman, R. Hain, S. Liben. Oxford: Oxford University Press, 2006. 14-27.
7. Ponkin I.V., Ponkina А.А. Pediatric palliative care. [Pediatricheskaia palliativnaia pomoshch]. Medicina. 2015;3(1):1-17. (In Russ.). Available at: http://www.fsmj.ru/015181.html. (Accessed: 03.09.2019).
8. Ponkina A.A. Erreur medicale dans le contexte de la protection des droits des patients en Russie. RGDM. 2013;(48):255-67. Available at: https://www.bnds.fr/revue/rgdm/rgdm-48/erreur-medicale-dans-le-contexte-de-la-protection-des-droits-des-patients-en-russie-4605.html. (Accessed: 03.09.2019).
9. Standards of Practice for Pediatric Palliative Care and Hospice. National Hospice and Palliative Care Organization, 2009. 31 p. Available at: http://www.nhpco.org/sites/default/files/public/quality/Ped_Pall_ Care%20_Standard.pdf.pdf. (Accessed: 03.09.2019).
10. Leuthner S.R. Fetal palliative care. Clin Perinatol. 2004;31(3):649-65. DOI: 10.1016/j.clp.2004.04.018.
11. Ponkin I.V., Ponkina А.А., Yeremyan V.V., Kuznetsov M.N. On legal bases for legal recognition of the value of life, human dignity, and the right to life of a child at the stage of prenatal development. [O pravovyh osnovaniyah pravovogo priznaniya cennosti zhizni, chelovecheskogo dostoinstva i prava na zhizn’ rebenka, nahodyashchegosya na prenatal’noj stadii razvitiya]. Moskva: Izd-vo zhurnala «GlavVrach», 2015. 106 s. (In Russ., French and English)
12. Ponkin I.V., Ponkina А.А. Palliative medical care: the concept and legal basis. [Palliativnaya medicinskaya pomoshch’: ponyatie i pravovye osnovy]. Moskva: Izd-vo zhurnala «GlavVrach», 2014. 81 s. (In Russ.). Available at: https://www.twirpx.com/file/1857066. (Accessed: 03.09.2019).
13. Ponkina A.A., Ponkin I.V. Assistance medicale palliative en Russie: quelques reflexions juridiques. RGDM. 2014;(52):141-55. (In French).
14. Traitement de la douleur cancereuse. [Treatment of oncological pain]. Geneve: Organisation mondiale de la Sante, 1987. 83 p. Available at: https://apps.who.int/iris/bitstream/handle/10665/41712/9242561002_fre.pdf?sequence=1&isAllowed=y. (Accessed: 03.09.2019).
15. Traitement de la douleur cancereuse et soins palliatifs: Rapport d’un Comite’ d’experts de l’OMS. Reuni a Geneve du 3 au 10 juillet 1989. [Treatment of oncological pain and palliative care]. Geneve: Organisation mondiale de la Sante, 1990. 88 p. Available at: https://apps.who.int/iris/bitstream/handle/10665/39533/9242208043_fre.pdf?sequence=1&isAllowed=y. (Accessed: 03.09.2019).
16. Uso de opioides en tratamiento del Dolor: manual para Latinoamerica. [Opioid application in pain treatment: Edition for South America]. Eds: P. Bonilla, L. De Lima, P. Diaz, M. Ximena León, M. Gonzalez. Caracas (Venezuela), 2011.112 p. Available at: https://cuidadospaliativos.org/uploads/2012/11/ManualOpioides.pdf. (Accessed: 03.09.2019). Memorandum for Alberto R. Gonzales Counsel to the President.
17. U.S. Department of Justice, Office of Legal Counsel, 2002. 50 p. Available at: https://www.justice.gov/olc/file/886061/download. (Accessed: 03.09.2019).
18. McCaffery M. Nursing Practice Theories Related to Cognition, Bodily Pain, and Man-environment Interactions. Los Angeles (CA, USA): University of California at Los Angeles Students’ Store, 1968. 207 p. Medical expert: Science is ‘conclusive’ that unborn babies feel horrific pain of abortion. 25.05.2015. Available at: https://www.lifesitenews.com/opinion/medical-expert-science-is-conclusive-that-unborn-babies-feel-horrific-pain. (Accessed: 03.09.2019).
19. H.R.36 - 115th Congress (2017-2018) Pain-Capable Unborn Child Protection Act. Available at: https://www.congress.gov/bill/115th-congress/house-bill/36. (Accessed: 03.09.2019).
20. Louisiana Revised Statutes. Available at: http://www.legis.state.la.us. (Accessed: 03.09.2019).
21. Idaho Statutes, Title 18 «Crimes and punishments», Chapter 5 «Pain-capable unborn child Protection Act». Available at: http://legislature.idaho.gov. (Accessed: 03.09.2019).
22. Wisconsin Statutes. Available at: https://docs.legis.wisconsin.gov/statutes/statutes/253.pdf; https://docs.legis.wisconsin.gov/statutes/statutes. (Accessed: 03.09.2019).
23. HB 1473 Pain-Capable Unborn Child Protection Act; penalty. Available at: https://lis.virginia.gov/cgi-bin/legp604.exe?171+sum+HB1473. (Accessed: 03.09.2019).
24. Koop C.E. A physician speaks about abortion. Available at: http://www.pathlights.com/abortion/abort08.htm. (Accessed: 03.09.2019).
25. Decision of the Federal Constitutional Court, №№ 2 BvF 2/90, 2 BvF 4/92, and 2 BvF 5/92, May 28, 1993. Available at: http://www.bverfg.de/entscheidungenZfs19930528_2bvf000290en.html. (Accessed: 03.09.2019).
26. Arret de la Cour Europśenne des Droits de l’Homme du 26.05.2011 (Definitif - 28.11.2011) de I’affaire «R.R. c. Pologne» (Requete № 27617/04). Available at: http://hudoc.echr.coe.int/sites/fra/pages/ search.aspx?i=001-104912. (Accessed: 03.09.2019).
27. In Re AC/Decision of the District of Columbia Court of Appeals of 1987, June 16 № 87-609. Available at: http://law.justia.com/cases/district-of-columbia/court-of-appeals/1987/87-609-0-0.html. (Accessed: 03.09.2019).
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For citations:
Ponkin I.V., Ponkina A.A., Shkoda A.S. A child’s right to receive pediatric palliative care at prenatal stage. Obstetrics, Gynecology and Reproduction. 2020;14(1):80-88. https://doi.org/10.17749/2313-7347.2020.14.1.80-88
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