Производство <дизайнерских эмбрионов>: правовой и биоэтический аспекты
https://doi.org/10.17749/2313-7347.2017.11.3.050-058
Аннотация
Статья посвящена исследованию «технологий производства дизайнерского эмбриона» («генетически выкроенного ребенка»), перечислению и краткому описанию этих технологий. В статье дана медико-правовая и биоэтическая оценка некоторых таких технологий, обоснованы причины противоправности ряда таких технологий.
Об авторах
И. В. Понкин
Институт государственной службы и управления ФГБОУ ВО «Российская академия народного хозяйства и государственной службы при Президенте РФ»
Россия
Россия
Понкин Игорь Владиславович – доктор юридических наук, профессор, профессор.
Пр. Вернадского, 84, Москва, 119606
А. А. Понкина
РОО «Институт государственно-конфессиональных отношений и права»
Россия
Россия
Понкина Александра Александровна – кандидат юридических наук, зам. председателя правления ИГКОП, эксперт Консорциума специалистов по защите прав пациентов.
а/я 49, Москва, 117525Список литературы
1. Japan panel greenlights gene editing of human eggs for basic study. URL: http://www.japantimes.co.jp/news/2016/04/22/national/science-health/japan-panelgreenlights-gene-editing-of-human-eggsfor-basic-study/#.VzmXOnr555_22.04.2016 [Accessed: 10.06.2017].
2. Ponkin I.V., Ponkina A.A. Technologies of child production from genetic material of three “parents”: legal and bioethical aspects. Stato, Chiese e pluralismo confessionale. 14 settembre. 2015; № 26.
3. Ponkin I.V., Ponkina A.A., Yeremyan V.V., Kouznetsov M.N. On legal bases for legal recognition of the value of life, human dignity, and the right to life of a child at the stage of prenatal development. Мoscow. 2015: 106 p.
4. Aznar J. Designer babies. A question of ethics. URL: http://www.observatoriobioetica.org/wp-content/uploads/2014/02/6.-Designerbabies_ING.pdf. Accessed: 10.06.2017.
5. Liang P., Xu Y., Zhang X. et al. CRISPR/Cas9-mediated gene editing in human tripronuclear zygotes. Protein & Cell. 2015; 6 (5): 363-72.
6. Netherlands gives green light for growing human embryos. Dutch government sanctions ‘limited research’ to help infertile couples and to tackle hereditary or congenital diseases. URL: https://www.theguardian.com/science/2016/may/28/netherlands-givesgreen-light-for-growing-human-embryos. 28.05.2016 [Accessed: 10.06.2017].
7. Walker M. «Designer Babies» and Harm to Supernumerary Embryos. Am Phil Q. 2008; 45 (4): 349-64.
8. Stankovic B. «It’s a designer baby!» – opinions on regulation of preimplantation genetic diagnosis. UCLA JL Tech. 2005; 9 (1): 1-31.
9. The protection of the human embryo in vitro / Report by the Working Party on the Protection of the Human Embryo and Fetus of Steering committee on bioethics of the Council of Europe. Strasbourg. 2003: 44 p.
10. Steinbock B. Designer babies: choosing our children’s genes. Lancet. 2008; 372: 1294-5.
11. Turriziani J.V. Designer Babies: The Need for Regulation on the Quest For Perfection. Law School Student Scholarship. 2014; Paper № 595: 32 p.
12. Convention for the protection of Human Rights and Dignity of the Human Being with regard to the Application of Biology and Medicine: Convention on Human Rights and Biomedicine, 04.04.1997. URL: http://www.coe.int/en/web/conventions/full-list/-/conventions/treaty/164?_coeconventions_WAR_coeconventionsportlet_languageId=en_GB [Accessed: 10.06.2017].
13. Reich J.B., Swink D. Outsourcing Human Reproduction: Embryos & Surrogacy Services in the Cyberprocreation Era. J Health Care Law and Policy. 2011; 14 (2): 241-97.
14. Cesaroni J.L. Designer Human Embryos as a Challenge for Patent Law and Regulation. Quinnipiac Law Review. 2012; 30 (4): 1-46.
15. De Melo-Martin I., Rosenwaks Z. Searching for the perfect child. Fertil Steril. 2015; 103 (2): 342-3.
16. Savulescu J., Gyngell C., Douglas T. The Ethics of Gene Editing. URL: http://petrieflom.law.harvard.edu/assets/publications/Savulescu_Gene_Editing_DRAFT.pdf [Accessed: 10.06.2017].
17. Universal Declaration on the Human Genome and Human Rights, 11.11.1997. URL: http://portal.unesco.org/en/ev.php-URL_ID=13177&URL_DO=DO_TOPIC&URL_SECTION=201.html [Accessed: 10.06.2017].
18. Stanley T. Three parent babies: unethical, scary and wrong. The Telegraph. 03.02.2015.
19. Aznar J. Designer babies – Searching for the perfect child. URL: http://bioethicsobservatory.org/2015/07/designer-baby-searching-for-theperfect-child/9056. 21.07.2015 [Accessed: 10.06.2017].
20. Collins F.S. Statement on NIH funding of research using gene-editing technologies in human embryos. URL: https://www.nih.gov/about-nih/who-we-are/nih-director/statements/statement-nihfunding-research-using-gene-editingtechnologies-human-embryos. 28.04.2015 [Accessed: 10.06.2017].
21. Genomics and World Health (Report of the Advisory Committee on Health Research). World Health Organization. Geneva. 2002: 241 p.
22. Why are we opposed to mitochondrial donation? URL: http://www.stopgm3parentbabies.com/why-are-weopposed-to-mitochondrial-donation/[Accessed: 10.06.2017].
23. Williams N. «Designer’ babies». Curr Biol. 2004; 14 (15): R594.
Рецензия
Для цитирования:
Понкин И.В., Понкина А.А. Производство <дизайнерских эмбрионов>: правовой и биоэтический аспекты. Акушерство, Гинекология и Репродукция. 2017;11(3):50-58. https://doi.org/10.17749/2313-7347.2017.11.3.050-058
For citation:
Ponkin I.V., Ponkina A.A. «DESIGNER EMBRYOS»: LEGAL AND BIOETHICAL ASPECTS. Obstetrics, Gynecology and Reproduction. 2017;11(3):50-58. (In Russ.) https://doi.org/10.17749/2313-7347.2017.11.3.050-058
Просмотров:
1258
Контент доступен под лицензией Creative Commons Attribution-NonCommercial-ShareAlike 4.0 International License.
Послать статью по эл. почте 
